7 responses to Genetic Treatment in the Plain Population
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    Loretta
    Comment on Genetic Treatment in the Plain Population (March 9th, 2012 at 09:55)

    I wonder if this clinic treats anyone other than amish/mennonites. I have a friend whose 22 yr. old daughter is fighting a myriad of problems related to her immune system. They nearly lost her last week-end. Do you know the answer to this, Erik? This girl does have the best of doctors in SC and has been to Duke Medical Center in NC. Her conditions are so rare, it’s been a struggle.

    In my trip to PA last fall I took the Witness farm tour and we passed the road that led to this clinic, as our tour guide talked just a little bit about it.

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      Comment on Genetic Treatment (March 9th, 2012 at 10:49)

      Genetic Treatment

      Loretta,
      Yes, Dr. Morton and his team do treat other patients besides Amish and Mennonite. However, I’m not sure if they treat adults. As Elizabeth mentioned, your friends should contact the clinic directly. They are tremendously helpful to many.

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      Sarah
      Comment on Yes, others treated. (May 4th, 2012 at 00:54)

      Yes, others treated.

      Loretta,

      Yes to other than Amish and Mennonite, they are treated, but you need to understand that this facility is geared to the unique Amish/Mennonite issues, and there may be little available for the little one you are concerned for.

      SCID is only one of the conditions. MSS is another. MSS is a silent killer, only now being understood. Think of sudden onset diabetes, with no insulins having effect.

      Sarah

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    Elizabeth Snoke
    Comment on Genetic Treatment in the Plain Population (March 9th, 2012 at 10:35)

    Dr. Morton has obviously been a blessing to the Amish and Mennonites. I don’t know how many of them have problems like these but the work his clinic is doing is creating so much knowledge about the problems and ways to treat them whenever possible.

    Loretta, perhaps you friend’s doctor(s) could contact Dr. Morton detailing the girl’s specific problems. If there are comparative problems at Morton’s clinic an exchange of information could be great for both parties.

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    rick
    Comment on Genetic Treatment in the Plain Population (March 9th, 2012 at 17:02)

    Dr. Strauss (see linked article at nature.com) related the Hoover’s story real time at the auction last September – the clinic’s staff was searching for the bone marrow donor that very weekend. Good to hear the outcome was positive.

    The 2 auctions I have attended have featured speeches by Drs. Morton and Strauss each time. They are quite inspiring. It is something to see the frenzied auction and eating come to a sudden halt as thousands of people stop what they are doing to gather to hear the doctors talk. The community clearly holds the doctors and staff of the clinic in high esteem… and rightfully so.

    After Dr. Strauss spoke of the Hoovers, Dr. Morton talked about the ways the Clinic uses some of its budget for academic research. He mentioned a young university student who had come to the clinic a dozen or more years ago with some exciting ideas about research he wanted to work on. That research led to the treatment used today in treating GA1. That student was Dr. Strauss.

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    Ed
    Comment on Genetic Treatment in the Plain Population (March 9th, 2012 at 19:32)

    Very interesting. Do Amish couples ever seek out genetic counselling prior to marriage?

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    Ann
    Comment on genetic treatment (March 18th, 2012 at 10:36)

    genetic treatment

    There is a similar clinic near Middlefield Ohio.(Geauga Co. Ohio, 4th largest Amish settlement) This one has not been in exsistance as long as the Pa. one but is doing similar work.

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